Palliative Care Services – Public Engagement Workshop findings

Between September 30th and October 24th Central London Clinical Commissioning Group (CCG) in collaboration with West London CCG, Hammersmith and Fulham CCG and Brent CCG ran a series of public engagement workshops. The role of these engagement events were to involve patients, local people and health and care professionals in helping us to develop plans to address present challenges facing palliative care services across Westminster, Kensington and Chelsea, Hammersmith and Fulham and Brent.  The workshops were attended by local residents, patients, health and care professionals and local councillors.

 Hug.jpg

Why do we need to change services? 

A recent independent review by Penny Hansford (ex-Director of Nursing at St Christopher’s Hospice) showed that our current palliative and end of life services are not reaching even half of local people at the time and place that they need them. 

We have also received feedback from patients and health and care professionals that palliative care services could be improved and made more accessible to everyone. 

What did we find out from the workshops? 

It was really useful to talk to local people about their experience and feedback of palliative care services across the boroughs. We have produced a workshop summary report which can be accessed here

In summary, across the three workshops we found: 

  1. Care works well once a service or pathway has been accessed with inpatient hospice services offering peace of mind for family, friends and carers. 
  2. Care is not standardised across different areas in the four boroughs
  3. There is inequitable access to information and support to access and navigate available services 
  4. Care planning should be transparent with family, friends and carers and start at an earlier stage
  5. More could be done to ensure that minority groups are aware of palliative care services and ensuring that these services are personalised for a diverse range of communities 
  6. Travel times to hospice services have a significant impact on carers and families. This should be a key consideration for any future model of care.
  7. More could be done to improve integration and coordination between services. 
  8. Bereavement services need to be planned earlier in the patient journey and be promoted better for friends, family and carers

Access-Improving-experience-PC_497x275.jpg

Graphic from event: Access

Care Now and Improving Experience.jpg

Graphic from event: Care

 AfterCare-Improving-Experience_500x233.jpg

Graphic from event: Aftercare & bereavement

How will this information be used? 

The information we have gathered will be used to inform the future design of palliative care services across Westminster, Hammersmith and Fulham, Kensington & Chelsea and Brent. 

What happens next? 

From the information we have gathered from the review and the public workshops Central London CCG in collaboration with the three other CCGs are working on a future plan for palliative care services.
We will be sharing our initial solutions around how we can improve palliative care services with the public so we can hear your feedback on these plans. 

If the new model includes a significant change, there will then be a public consultation to gather views on the proposal.  

You can stay up to date with the progress of the palliative care services review by signing up to our mailing list by emailing your interest to nwlccgs.triborough.palliativecare@nhs.net

If you have any further questions please write to us at nwlccgs.triborough.palliativecare@nhs.net